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Establishing a Scottish Register of people with MS
MS Society Scotland has committed to undertake a long-term project to create a national register of people with MS in Scotland.
Scotland appears to have the highest number of people with MS in the world. The often quoted number of 10,400 people in Scotland with MS is derived from different one-off research projects.
This means that research and service development is done on the basis of estimates. Because of this uncertainty, many important questions about MS in Scotland cannot be answered. For example, how many people currently have MS, and how many new cases are diagnosed each year? Does MS differ between people with different genetic backgrounds? Are pre-birth exposures important? The national register will provide more accurate information to help answer these and other questions.
The project will be a collaboration between the MS Society Scotland, people with MS, Universities, MS Nurses and Neurologists. The cost is initally small and the project will be ongoing over several years.
Read about the launch of the register
MS Register Newsletter 1
Download issue 1 of the Register Newsletter 12/03/07
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